#longcovid

Unbound: Illness is not the end of dance (m.youtube.com)

Finally watched Unbound - while much in the film is beyond my ability I found it beautiful. I particularly like the seated and bed portions as they’re closest to my reality. The music is very calm - I kept it very low but I was able to listen. #MECFS #LongCovid @liapas.bsky.social

Join us for a Research Roundtable this week, "Patients to Researchers: Lived Experience" Friday, August 14 at 1 pm ET US #MECFS and #LongCovid patients will discuss their experiences to help researchers improve research projects and trials Register: us06web.zoom.us/webinar/regi... 1/2 🧵

MEDICINE HAS MOVED ON. SOME DOCTORS HAVEN’T. Are you still being told it’s all in your head? Dr Funmi Okunola voices her frustration at the continued psychologizing and dismissal of people living with Post-Viral and Chronic Illness

This is obviously a study about the CURRENT healthcare workforce - I’m still missing a study that gives us some numbers as to how many healthcare workers have had to LEAVE the workforce due to

Only a few in-person spots remain for the 2026 #LCWSymposium! Don’t miss the opportunity to join researchers, clinicians, and people with lived experience for two days of learning, dialogue, and collaboration advancing #LongCOVID research. Register today: bit.ly/4bXijzY

Long COVID Gut: What the Microbiome Research Really Shows (longcovidjourney.com)

Your gut might be involved in #LongCovid. But before you buy the 17 supplements, kill Candida, ban half your diet and panic about “leaky gut”… What does the science actually show? We went down the rabbit hole so you don’t have to. 👇 longcovidjourney.com/slug-long-co...

Petition: Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left without vital medical care (petitions.senedd.wales)

A petition for Severe #MEcfs in Wales petitions.senedd.wales/petitions/24...

Patients Aren’t Just Research Subjects. They’re the Experts. @DrMark_Faghy explains how patient-led research could change Long COVID research.